The Prince

Eamon before surgery ...

And, just after...now his face is clear, no wires or masks. Isn't he handsome? The tubes connect to his ventilator, but are temporary. Once he is stronger, and the new trach is put in, weaning him off the machine will be a priority.


Eamon had a restless night and day, sedated with arm restraints, and still he was getting into trouble. Our first victory was bowels on the move, after a week and several doses of miralax, the prince was set free! Too much information, right! But it truly was an answer to pray.

Maeve and Myles came for another visit this afternoon. Myles wanted to chat with his boy.



Now, on the other side trying to get a closer look.



The phone rang, Maeve called from the bathroom, I turned for 10 seconds at best, and found Myles had scaled the bed and was perched atop some rather important tubes. The nurse scooped Myles up before any real harm was done. It was a fun visit!

Eamon's morning blood work was normal! Only one dose of that medication did the trick - buffer system in order. The O2 was even able to be turned down...for a while.

His O2 started to drop, causing the nurse to suction, do chest percussion, raise the level on the vent, all to no avail. The Dr was called back in, the xray showed some increased "issues", and thought that the mass fluid loss from the afore mentioned "movement" was causing present O2 decrease. Eamon's central and arterial lines were checked for infection, and even though results are pending, 3 new antibiotics were introduced (4 total!). The Dr is not taking any chances, Eamon is still too fragile. A third red blood cell transfusion was ordered to help circulate O2 throughout Eamon's body.

There is so much going into his little body. In addition to the antibiotics, there's sedation medicine, pain killer, and blood pressure regulator, IV fluids, zantac, vigabatrin, miralax (maintenance dose), and now benedryl to counteract a reaction to something listed above. Yikes!

The good news is Eamon is finally asleep, resting quite nicely actually. I feel safe with Eamon's Dr, the intensivist, and a group of amazing nurses. The prince is being so well cared for by people who count it a privilege to work with him. Eamon's godmother, Auntie Lisa, brought over some beautiful tulips yesterday. My favorite spring flower. And a touch, or glimpse, of new life fell over the room. Eamon is coming out of winter, I can feel spring is on the way. Even though I can't see the buds yet, I know they are there. Once buried, soon ready to bloom. Hold on, sweet prince, your time is almost here!