Mary's Kids

Eamon has been blessed with several great therapists. These women really love the little prince and invest a lot of time on his behalf. Eamon's schedule is quite full with physical, occupational, vision and speech therapies. Most are in our home through Early Intervention. But, on Fridays I take him to see Miss Lisa for PT.


We first met Lisa during our stint in the NICU. She visited Eamon and I during his second week of life. I immediately liked her. Her words were kind and helpful. She spoke and interacted so beautifully with my fragile boy.


We continued with therapy after Eamon's discharge and were again working with Lisa. I just marveled at how intuitive she was with Eamon, and how empathetic she seemed toward me. There was something different about her, but I could not put my finger on what.


A problem with our insurance caused an outstanding balance at the center. At the end of our session, Lisa handed me a brochure and explained that Mary's Fund would handle the bill, I was not to worry. I was overwhelmed, especially when I realized Mary was Lisa's daughter. She had passed away, and a fund had been set up to honor her memory.


Mary Therese Rose Crilly was born with Joubert Syndrome, a rare genetic disorder that left her profoundly disabled. Mary was full of love, and inspired all who knew her with her courage and joy. Mary died just a few weeks before her fifth birthday. Mary's family wanted other special needs children who are treated out of The Valley Hospital Center for Child Development to enjoy the simple joys of childhood. The fund pays for various therapies, programs, activities, and needed equipment.


Eamon has been on the receiving end. Our new and improved insurance is not accepted at the center. I was devastated. Lisa phoned and said to come anyway-Mary's Fund would cover it. There are adaptive toys on order along with Eamon's upcoming Kid Kart, a customized seating system just for the little mister. Eamon even plays with one of Mary's favorite toys, a donation from Lisa - and priceless to me.


We never met Mary, yet her legacy touches Eamon and I daily. Mary's Fund is having their 6th Annual Fund Dinner on October 19th at the Sheraton Crossroads. To my surprise, Eamon and our family are invited as special guests. How fun for us to follow along with Eamon, one of Mary's very special children. I can't wait to dress the prince up for his big night.


I feel compelled to spread the word about Mary's Fund. It would be great if you could join us at the dinner. There will be clowns juggling, great food, a jazz band, and dancing. The Big Top Bop 2 is from 4-8pm and should be lots of fun for the kids! Even if you can't, donations can be made directly to the fund. Rarely do I fund raise, but for Mary's kids it is worth moving out of my comfort zone.

It will be my privilege to escort Eamon to his first ball. I just hope the little prince saves a dance for his mama!


Gift List continued...

121. Mary and the Crilly Family - examples of lives touched by the living God.

122. The mister, Eamon, whose life takes me on all sorts of interesting adventures!