Being Known

I just love this image. It is how we, all those who love and believe for Eamon, see him.

I had a follow-up appointment with the geneticist this past week. Eamon has had many tests over the course of the year, all offering little hope of a diagnosis. During Eamon's surgery in June, they took a sample of his muscle with hopes of information. Information as to where we are, and where we might be going. A diagnosis offers a prognosis. The Dr. said the tests offered some good news. Eamon does not have an array of degenerative conditions - thank you Lord! But, a name still eludes them. All these tests and nothing, still.

We have decided to discontinue the search effort. Even this renowned geneticist believes it is futile. Here a brilliant Dr, gifted in unearthing rare genetic information does not see the profit in more testing. So where does that leave Eamon.

I have thought about this, over and over. And the answer is right where we began. In an unknown place, charting new waters, living and learning as we go, all the while fixing our eyes on the one who does know.

Eamon is known. He has a name - child of God, and therefore is a true prince. Eamon is fearfully and wonderfully made. God created his inmost being and knit Eamon together in my womb. All of Eamon's days were ordained before one of them came to be.

Eamon is a treasure, so rare that even the best and brightest can not identify him.

So here we are, with one less Dr. to see, ready for all that God has prepared in advance for Eamon's precious life.

I love that my Uncle Pat always asks, "What's the Good News?" So here goes:

• Eamon is laughing, consistently.
• Eamon is responding and reacting to all sorts of stimulation - people, toys, music, whatever - and it is pure satisfaction for the recipient.
• Social dynamics are emerging - where Eamon is learning the give and take of conversation.
• Eamon is vocalizing, trying out different vowel and consonant sounds.
• He is lifting his arms and legs while stretching and reaching.
• He is growing stronger, slowly -but we'll take it!
• And, even though Eamon does not fit into any specific "category" he fits perfectly here with us!

We are praying, always for healing, but especially for strength today. His O2 requirement has increased. I do well with visuals. So, if you are able to pray with us for our sweet little man, please see him like that strong, fearless lion at the top of the post. I can hardly wait to hear his roar!